In our previous blog, The Ethics Quagmire: Case Studies you might have read the case study by Kathy Tannous concerning the difficulties she has faced getting ethics approval from three ethics committees. But are there problems closer to home for researchers, in their own institutions, even when only one HREC is involved? We think so. But the solution may also lie with these institutions, in the better application of existing guidelines. We explain how below.
In Flying Blind 2, we have been highlighting the tortuous route of the researcher’s journey, as they negotiate the ethics processes and the myriad data sources required for their research. In the next few blogs, Australian health and medical researchers who have been through the journey, present real-life case studies and back-of-the-envelope calculations of what it takes to identify existing data sets and negotiating the ethics processes, to link the data sets to support their research.
One would think that the process of obtaining data to conduct health and medical research in Australia would be straightforward. Unfortunately, it’s not. Researchers are constantly plagued by incessant delays and lengthy negotiations – all which stem from the fact that they have to go through a variety of different processes before their projects can commence.
Talk to most Australian health and medical researchers and they’ll tell you that data is vitally important to their work. Data can help us track population health trends and further our understanding of disease causation.