- Hospitals and Healthcare are a Number 1 priority for Australians.
- Healthcare consumers are initiating a digitally enabled care experience with greater use of digital tools and electronic health records.
- Consumers recognise benefits which electronic records will bring such as safe and appropriate care, through better communication between health service providers.
- Majority accept their doctor discussing their health information with other health professionals.
- Health and medical research are seen as important in improving healthcare, as well as reducing healthcare costs.
- 79% support use of their medical records in health research.
- Consumers overwhelmingly supported the concept of opt-out and personalised controls (for PCEHR), even whilst recognising they may not be significant users.
- Support for data linkage (including tissue samples) is higher among women and men aged over 55 years.
- Consumers are concerned about privacy, confidentiality and security of their health data, and believe they should be able to decide who accesses their health records.
- Consumers strongly believe that they own their health data.
- Reluctance to share medical information has fallen from 25% in 2001 to 7% in 2013.
- Permission to use health information for purposes other than medical treatment is still important.
- In the USA there is an increasing willingness to share personal health information to enable next generation healthcare and improved health outcomes for all.
- Data sharing is supported where this is seen to contribute to better care or services, both in general and in the NHS. Patients expected information to be shared within the NHS, and are often surprised to find this is not already happening.